Parkinson’s Disease affects more than 10 million people worldwide, making it one of the most common neurological conditions.
For healthcare workers supporting patients with Parkinson’s, understanding the condition and its impact on daily life makes a real difference in providing adequate care.
What is Parkinson’s Disease?
Parkinson’s Disease is a neurological condition that affects movement.
It occurs when specific nerve cells in the brain stop working correctly and don’t produce enough dopamine, a chemical messenger that helps control movement and emotional responses.
Many people confuse Parkinson’s Disease with Parkinsonism, but they’re not quite the same thing.
Parkinsonism is actually a broader term that includes several conditions with similar symptoms. While Parkinson’s Disease is what we see most often, other forms include multiple system atrophy (MSA) and progressive supranuclear palsy (PSP).
Signs and Symptoms to Watch For
When working with Parkinson’s patients, you’ll notice that symptoms often start gradually and change over time.
Movement-related symptoms are usually the first ones people notice. Patients might move more slowly than before, or their muscles might become stiff. Facial muscles are affected and can give somebody a mask-like appearance.
Some experience tremors, especially when they’re resting, freezing can occur when trying to walk, and you might see changes in their posture and balance. Many patients find their handwriting becoming smaller over time.
However, Parkinson’s affects more than just movement. Sleep problems are common, and patients might struggle with memory and thinking. Communication often becomes more challenging. Physical changes can include swallowing difficulties, digestive issues and bladder problems.
Mood changes and fatigue are also common symptoms. Some patients notice changes in their skin, such as becoming more oily or very dry.
Living Day to Day with Parkinson’s
Each person’s experience with Parkinson’s is unique, but many continue their regular activities with proper support.
Physical activity plays a vital role.
Simple movements like rotating the neck, stretching the arms, or practising balance exercises can make a big difference. Working with a physiotherapist helps create an exercise plan that works for each individual.
Communication might become more challenging as the condition progresses. Speaking often becomes slower or quieter, so giving patients extra time to express themselves is important.
This patience helps maintain clear communication and shows respect for the person’s dignity.
Daily tasks might take longer, but small changes can make them more manageable.
Some people find special utensils helpful for eating, while others benefit from grab rails for safety. Creating clear medication routines helps ensure they’re taken at the correct times.
Regular rest periods throughout the day help manage fatigue.
Communication Sensitivity
When interacting with someone who has Parkinson’s, specific phrases and approaches should be avoided. Never rush or interrupt them while speaking, as this can increase anxiety and speech difficulties.
Avoid saying “You’re too young for Parkinson’s”, as it dismisses their experience. Don’t offer unsolicited advice about “miracle cures” or suggest they’re not trying hard enough when facing challenges.
Never define someone solely by their condition — they are a person first, not just their diagnosis.
Resist the urge to complete their sentences or movements, as this can diminish their independence and confidence.
Treatment Approaches That Help
Modern medicine offers several ways to manage Parkinson’s symptoms.
Different medications can help, such as dopaminergic, dopamine agonists, and other specialised drugs.
The timing of these medications is crucial — they need to be taken on schedule to work their best.
For some patients, Deep Brain Stimulation (DBS) might be an option when medications aren’t providing enough relief. Medical science continues to advance, with new treatments like focused ultrasound techniques showing promise.
Supporting Patients with Parkinson’s
As healthcare workers, our approach to supporting Parkinson’s patients makes a real difference.
Allowing extra time for movements and responses shows respect and understanding. Listening carefully helps us understand their needs better.
While we want to help, supporting independence where possible helps maintain dignity and confidence.
Creating and maintaining routines often helps patients feel more secure. Staying informed about their medications ensures we can provide the best possible care. It’s important to remember that each patient experiences Parkinson’s differently, so personalised care works best.
Final Thoughts
While Parkinson’s Disease brings challenges, proper understanding and management strategies help maintain quality of life.
Each person’s experience is different, which is why personalised care plans work best. With ongoing medical advances and strong support systems, many people with Parkinson’s lead active, fulfilling lives.
For us as healthcare workers, understanding the physical and non-physical symptoms allows us to provide better support for our patients and their families.
Staying current with training and best practices helps us deliver the best possible care for those living with Parkinson’s.
